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Your family is not alone. We are here to try and connect all families affected by this genetic finding in hopes to learn more, build support and provide optimal patient care. Please consider joining our mailing list so we can contact you about further family meetings, research opportunities or clinical updates.

The Yellow Brick Road Project

From the Board of Directors:

The Yellow Brick Road Project is a quest to cure HNRNPH2 mutations, our daughters’ ultra rare genetic neuro-developmental disease. The friends Dorothy made on her journey to meet The Wizard of Oz, in the timeless 1939 film, inspired the name of our organization.

Like the Scarecrow who wishes for a brain, our girls’ neurological development is severely impaired and impacts everything; we strive to improve their cognition. Like the Cowardly Lion, each one affected suffers from anxiety; we strive to find ways to give them confidence and courage to navigate in the world.

And what about the Tin Man? He longs for a heart in the story. Like him, we strive to give our girls a more fulfilling life, free from HNRNPH2 mutations and everything this despicable disease has stolen from them.

Dorothy, as the story goes, wants to return home, to where she belongs. Help us on our journey, on our Yellow Brick Road home, to a cure.”